“Paras has been diagnosed with Spinal Muscular Atrophy Type-1 (SMA-1), a rare genetic disorder that weakens his muscles, making it impossible for him to sit, crawl, or even move his tiny hands and legs like other children his age.” - Abhilash 

Hello, my name is Abhilash Bagal, and I am reaching out to you with a heartfelt plea to save my 21-month-old son, Paras. Paras is the light of our lives, the joy of our small middle-class family in Satara, Maharashtra. His laughter fills our home, but his smile hides a battle with a devastating condition that no child should ever have to face. 

SMA-1 is not just a disease; it is a thief that robs children of their ability to grow, thrive, and live freely. For Paras, every day without treatment means a step closer to losing the basic abilities that we often take for granted. His life depends on an urgent treatment involving the life-saving gene therapy Zolgensma, a drug that costs an unimaginable ₹14 crores.

Paras’ Condition

Paras’ symptoms began to show at around 9 months. He struggled to sit without support, and by the age when most children were taking their first steps, Paras’ movements became slower and weaker. Now, he cannot even stand or sit without help, and even swallowing is a challenge. Watching my little boy struggle with something so fundamental breaks my heart as a father.

The Treatment

The only hope for Paras lies in the miraculous gene therapy Zolgensma, which can address the root cause of SMA-1 and potentially save his life. The drug, recommended by his doctors at P.D. Hinduja National Hospital in Mumbai.

In the meantime, Paras has been prescribed Risdiplam to preserve his muscle function while we work tirelessly to raise funds for Zolgensma. Risdiplam, though vital, comes at a cost of ₹6 lakhs per bottle, further adding to the financial strain on our family.

Our Financial Struggle

We are a family of four, including Paras’ grandmother. I am the sole breadwinner, working as a stenographer, earning ₹6 lakhs annually. Despite our modest means, we have already spent all our savings, amounting to nearly ₹2 lakhs, on his initial treatments.

“Time is running out for my little son Paras. Doctors have urged us to administer Zolgensma within the next three months to give him the best chance at life. Your support could be the miracle that saves Paras and gives him the life he deserves.” - Saylee Bagal 

Help Now

Paras has a fighting spirit, and we refuse to give up on him. Together, we can save his life and turn this dark chapter into a story of hope and resilience.

Donate now and share my son’s story to help him undergo a successful treatment. 

How to Help? 

Donate: Please click the donate button to donate and help my son overcome Spinal Muscular Atrophy Type-1 (SMA-1). 

Share: Share my son’s story with your friends and family. Kindly ask them to share and re-share his struggles on WhatsApp, Instagram, Facebook, Twitter, and other social media channels.

कैसे मदद करें? 

दान करें: कृपया दान करने के लिए दान बटन पर क्लिक करें और मेरे बेटे को स्पाइनल मस्कुलर एट्रोफी टाइप-1 (एसएमए-1) से उबरने में मदद करें। 

साझा करें: मेरे बेटे की कहानी अपने दोस्तों और परिवार के साथ साझा करें। कृपया उनसे व्हाट्सएप, इंस्टाग्राम, फेसबुक, ट्विटर और अन्य सोशल मीडिया चैनलों पर उसके संघर्षों को साझा करने और पुनः साझा करने के लिए कहें।

**Disclaimer - SMA is a progressive disease that causes Paras’s muscles to weaken over time. To prevent further deterioration and slow the progression, Paras urgently needs the drug Risdiplam to preserve muscle function only if it is prescribed by the doctor, While the fundraising for Zolgensma is underway, starting Risdiplam immediately is a critical step to safeguard the child’s life and preserve muscle function.**